Blog Archives

Kirsten Rees - Fibromyalgia; a Change in Health - a guest post for Ehlers-Danlos, ME, Fibromyalgia, and Mental Health Awareness Month

5/21/2019

Everything changed for me after 2012. I would have described myself as a healthy, active woman who loved to socialise and travel. That summer, I climbed Ben Lomond, cycled from Glasgow to Edinburgh, and completed Tough Mudder® all to raise funds for charities. Throughout my twenties, I had worked in various jobs and was fortunate enough to have lived in several countries. I had career and life plans and they were big!

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Brian Tyrrell - Autism and Burnout - a guest post for Ehlers-Danlos, ME, Fibromyalgia, and Mental Health Awareness Month

5/11/2019

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S E Smart - Brace Yourself - a guest post for Ehlers-Danlos, ME, Fibromyalgia, and Mental Health Awareness Month

5/10/2019

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Thank you to Julie for inviting me to share this story about my life (so far) with chronic illness.

I’ve been chronically ill all my life, with a diagnosis only relieving me of the ‘hypochondriac’ label a few years ago. It was not for want of caring – my mum did take me to the Drs when I complained about painful legs as a child (tests showed it was not juvenile arthritis), and when I blacked out as a teenager (tests showed it was not epilepsy), and when I had unexplained fevers. She’d pick me up from school when I was crying about painful ears, and she took me to casualty when I broke my arm.

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A series of guest posts for Ehlers-Danlos, ME, Fibromyalgia, and Mental Health Awareness Month

5/9/2019

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This month is Ehlers-Danlos Awareness month, this week is ME Awareness Week, and Sunday is Fibromyalgia Awareness day: so I wanted to write a little here about my illnesses, and how living with chronic fatigue (CF) goes hand-in-hand with them. I’ve asked a couple of fellow sufferers (and creatives) to also share their experiences of living with CF and how their various disabilities impact it, and will be sharing those on here as guest posts over the next few days.

The zebra represents rare medical illnesses. Artwork by Brian Tyrrell

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